Adult Regional Coordinator West TSC Alliance, ICAV USA Rep

Daniel was adopted from mainland China at three years old and currently lives outside the Seattle/Tacoma USA area. He was diagnosed with a rare disease called TSC at six years old. His parents did not know about his condition until they had him evaluated by a dermatologist. Daniel is now a young adult working in the aviation industry. Daniel is also a young adult that identifies as LGBTQ+. Daniel has been involved with the TSC community for about five years and has participated and volunteered a lot of his time to the TSC community locally and globally. spreading awareness and raising money to help find a cure. Daniel started volunteer work with Daniel started volunteering with the TSC Alliance in 2017 just trying to get answers about his health condition. Just in 2023 Daniel has been advocating for both rare diseases and adoptees affected by a rare disease, medical conditions and or disability.

Learn more about TSC

What is TSC, Tuberous Sclerosis Complex
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity, understanding this condition can be a source of hope, strength, and empowerment throughout life’s stages.
Learn more

An Introduction to Tuberous Sclerosis Complex
A booklet intended to provide basic information about tuberous scelerosis complex (TSC).
Learn more